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Standardisation des mesures du risque pathologique et individualisation de la prise en charge: Les effets paradoxaux du dépistage néonatal systématique de la mucoviscidose

Abstract : Standardization of the measure of disease risk and individualization of patient careThe paradoxical effects of the routine neonatal screening for cystic fibrosisDriven by advances in molecular biology, genetic tests now allow for a focus on early prevention and personalized care for some chronic diseases. Through the analysis of the impact of mass public screening, namely the routine neonatal screening for cystic fibrosis, this article intends to explain the metrological mechanism which underlies its implementation and leads to a “disembodied” clinical condition. Far from negating clinical work, standardization of the measure of disease risk, prior to screening, generates grey areas. We are witnessing the extension of definition of diseases resulting in the multiplication and complexity of clinical conditions ranging from normal to pathological. The rationalization of procedures is hampered by the high level of scientific and clinical uncertainties which poses the problem of classifying those at risk. Faced with new scenarios, the elaboration of a high-risk medicine on a large scale paradoxically strengthens the case for the individualization of patient care
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https://hal.archives-ouvertes.fr/hal-01369548
Contributor : Guy Minguet Connect in order to contact the contributor
Submitted on : Wednesday, September 21, 2016 - 10:53:52 AM
Last modification on : Friday, August 5, 2022 - 2:54:51 PM

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  • HAL Id : hal-01369548, version 1

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Guy Minguet, Chloé Langeard. Standardisation des mesures du risque pathologique et individualisation de la prise en charge: Les effets paradoxaux du dépistage néonatal systématique de la mucoviscidose. Terrains et Travaux : Revue de Sciences Sociales, ENS Cachan, 2016, Mesurer pour prévenir ?, 1 (28), pp.198. ⟨hal-01369548⟩

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